Tuesday, April 5, 2011

ACNES Abdominal Cutaneous Nerve Entrapment Syndrome

http://xnet.kp.org/permanentejournal/sum02/acnes.html

After months of pain and numerous medical tests that were totally unnecessary, the only other diagnosis found is Abdominal Cutaneous Nerve Entrapment Syndrome. Which is a pinched nerve somewhere in the spine or ribs which can come and go depending on if it is aggravated or moved by posture etc. Unfortunately, normal x-rays cannot see it so a DR who is familiar with the condition needs to inject lidocaine into the spot where the pain is concentrated the most. I kept trying to tell them where the pain started but they just assumed it was gallbladder or liver problems and had me tested.

One top of this condition, I do have spinal arthritis which may be contributing to the pressure on the nerve. And I also have pressure that cause my arms and shoulders to spasm and burn. I do have a crooked spine and humpback and round shoulders which cause my spine to curve inward. Randy had it with his hip for years and it was not taken care of until his hip surgery and no DR even thought what it might be. Even young people can have this problem.

So I need to find a DR who can treat this but in the mean time my DR wants me to have more tests and an MRI which I don't think will do any good. (I already had one of my brain and I guess I still have a brain.)I think I will have to go to a pain specialist. The pain can be very bad and if feels like you are dying. But after all the tests I have, I am perfectly healthy except for the nerve entrapment. All I know is maybe that's what my mother had with all her pain. They say it's quite a common condition but it seems most Dr's don't know much about it. My DR finally said that I probably have it but he has no answer on what to do next.  So I have to learn to live with the pain and I never know whether it will be here tomorrow or gone for a few days. So very discouraging. I hope I can find a DR who knows had to treat it. That is all I can say.

On top of this problem, Randy got bit by Wellington and it become infected. We are contemplating letting him go as well as a couple of other cats. Wellington is a good cat but not with Randy's white female. He stalks her all the time and when Randy tried to get him away, he bit Randy. Too many cats with too many different personalities. Gimli and March and Blue do OK but the others all have their problems. So we may just have to let some go.

1 comment:

Tanya said...

Hi Rita, I'm sorry to hear about your suffering! I was actually wondering if you had found a doctor who has been able to help you... My fiance is dealing with the same problem, ACNES, but his was cause from a work injury, one in which his employers refuse to accept. We are now trying to figure out a way to deal with this properly and when I stumbled across your blog I couldn't help but stop and ask. I have been doing research and have read that there are injections that can work, as well as accupuncture and a few other natural things. Maybe some of this will help you out as well. If you would like to contact me that would be wonderful. My name is Tanya and my email is buttlyboo12@gmail.com

The lady we stayed with in Santa Rosa has a sister who is a famous writer. Her name is http://www.ellynbache.com/